I have a daughter who, for the first time, woke up and cried.
She was four weeks old when I delivered her.
She spent the next five months in the hospital.
The day after her birth, I drove to the emergency room for a checkup.
The doctor asked, “Have you ever seen anything like this before?”
I shook my head.
I had just seen a baby who was born with an unknown condition.
But the doctor said, “No, but this is the first you’ve seen it.”
That was the day my daughter came back from the hospital to me.
We hugged and cried together, and I said, I’m not scared of this.
That’s how she was born.
I am not afraid.
When I gave birth to my daughter, I thought, this is what I have to do every day.
I’ve lived my whole life with the possibility of this happening to me, so I have learned to embrace it.
My husband and I both grew up with similar fears about the risk of having a child with an uncommon birth defect.
I remember my grandmother crying in front of her children when she was pregnant.
“It will be like a nightmare,” she said.
But then, the dream came true.
My daughter was born after six months of surgery.
I never had any doubts.
It was a miracle.
What does that tell you about the risks we face when we have a child?
We have to be more open about having a baby with a rare birth defect, which can happen when a pregnancy is delayed by medical problems.
I’m still learning the dangers of this condition.
I have been trying to learn about my daughter’s condition and what happened to her before she came back to me as well as what happened after she came home.
My family and I have struggled with infertility for the last 30 years.
I feel that my daughter and I are both trying to be like other parents, because we’ve known that this is possible for years.
The condition I have, called congenital amniocentesis, is not new.
It is a procedure where a nurse inserts a needle into the uterine wall to collect samples of the cells that form the placenta.
The sample is then passed into a machine that can look for the proteins that cause a birth defect or an abnormal growth in a child.
I think it’s important to acknowledge that I am still trying to understand this condition and its risks.
I also know that my baby has a very unique biology.
She has a completely different brain from most babies.
She is very, very small for her age and is a perfect example of an infant who is too small to be born with this condition, which means she has the ability to be an independent baby.
I know that she’s not going to have the same luck as other infants with birth defects.
But I hope that by sharing my experiences and trying to raise awareness about it, I can help to create more understanding of the risk and also to raise public awareness of the condition.
We don’t know everything about this condition yet.
I don’t have any plans to start a research study to look for causes or treatments for this condition in the future.
But when I am done with my work and can leave the hospital, I want to spend the rest of my life working with babies and other children who have birth defects to find solutions for their condition.